Comments on: Fibrous Dysplasia // the Sperly Hip // A History in the Making… http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/ Formerly home of Dr.TriRunner Sat, 04 Feb 2012 01:57:15 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: My definitely-NOT-pre-race-report. Dang… « RunRoamRecycle http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/comment-page-1/#comment-719 My definitely-NOT-pre-race-report. Dang… « RunRoamRecycle Sat, 03 Oct 2009 02:58:11 +0000 http://runroamrecycle.wordpress.com/?p=694#comment-719 [...] my last post, I was still undecided about what I was going to do about the Marathon. For anyone who just [...] [...] my last post, I was still undecided about what I was going to do about the Marathon. For anyone who just [...]

]]> By: Angharad (Eating for England) http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/comment-page-1/#comment-718 Angharad (Eating for England) Wed, 30 Sep 2009 16:04:46 +0000 http://runroamrecycle.wordpress.com/?p=694#comment-718 Ugh so sorry to hear your bad news!! I'm sure you will make the decision that is right for you once you have more information from your doctor...who by the way, I might ask you for his details for my crazy knee. On a lighter topic - French Meadow! I've never had their tomato basil soup but you made it sound like heaven in a bowl! I am a fan of dinner at French Meadow - love their bread baskets and delicious salads! So cool that you and your Dad have a tradition of going there! Ugh so sorry to hear your bad news!! I’m sure you will make the decision that is right for you once you have more information from your doctor…who by the way, I might ask you for his details for my crazy knee.
On a lighter topic – French Meadow! I’ve never had their tomato basil soup but you made it sound like heaven in a bowl!
I am a fan of dinner at French Meadow – love their bread baskets and delicious salads! So cool that you and your Dad have a tradition of going there!

]]> By: Holly (The Healthy Everythingtarian) http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/comment-page-1/#comment-717 Holly (The Healthy Everythingtarian) Wed, 30 Sep 2009 01:55:08 +0000 http://runroamrecycle.wordpress.com/?p=694#comment-717 oh girl, i am so sorry to hear this! i think you need to make the best decision for you, whatever that may be but more than anything, if running will make the injury worse, i wouldn't do that. however, if you do run, we must meet up post-race and at least meet! lotsa love to ya, and heal soon. in 9 days if possible :) oh girl, i am so sorry to hear this! i think you need to make the best decision for you, whatever that may be but more than anything, if running will make the injury worse, i wouldn’t do that. however, if you do run, we must meet up post-race and at least meet!

lotsa love to ya, and heal soon. in 9 days if possible :)

]]> By: Lacey http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/comment-page-1/#comment-716 Lacey Mon, 28 Sep 2009 15:23:43 +0000 http://runroamrecycle.wordpress.com/?p=694#comment-716 keep your head up. you are doing great. you will get through this... you've come a LONG way in a year, it's unbelievable, so don't forget all that!!!! i think posting the old pics is a good reminder, too. best of luck. aren't good doctors the best thing in the world? not just talented... but THERE FOR YOU. keep your head up. you are doing great. you will get through this… you’ve come a LONG way in a year, it’s unbelievable, so don’t forget all that!!!! i think posting the old pics is a good reminder, too. best of luck. aren’t good doctors the best thing in the world? not just talented… but THERE FOR YOU.

]]> By: Christina http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/comment-page-1/#comment-715 Christina Sun, 27 Sep 2009 04:25:14 +0000 http://runroamrecycle.wordpress.com/?p=694#comment-715 Hey, Sperly! Sorry to hear about all this, and hopefully the news will be good. I would like to say that to an extent your body is capable of handling the 26 miles, and if you lay low until then it won't cause much damage, but that's just that inner running voice talking. Do what you need to do, and heal up. =) Hey, Sperly! Sorry to hear about all this, and hopefully the news will be good. I would like to say that to an extent your body is capable of handling the 26 miles, and if you lay low until then it won’t cause much damage, but that’s just that inner running voice talking. Do what you need to do, and heal up. =)

]]> By: leianna http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/comment-page-1/#comment-714 leianna Sat, 26 Sep 2009 13:15:32 +0000 http://runroamrecycle.wordpress.com/?p=694#comment-714 I hope that doctor has some good news for you soon! You are doing better that I ever would, you're a strong person who has passion for running and no matter the outcome I'm sure you'll still do great things! Can't wait to see more from this! If I ever come back to Minneapolis (which could be 5 years) I want your doctor, he sounds amazing! I hope that doctor has some good news for you soon! You are doing better that I ever would, you’re a strong person who has passion for running and no matter the outcome I’m sure you’ll still do great things!
Can’t wait to see more from this!
If I ever come back to Minneapolis (which could be 5 years) I want your doctor, he sounds amazing!

]]> By: marathonmaiden http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/comment-page-1/#comment-713 marathonmaiden Sat, 26 Sep 2009 13:04:28 +0000 http://runroamrecycle.wordpress.com/?p=694#comment-713 as i said on fb i'm sending t&p your way. you've had to deal with some much with this and it sucks. a lot. but it sounds like you have a great support team around you. and you've been super strong and wicked smart so i know you'll make the right decision for you. keep asking questions and staying informed! you can totally pull through this! as i said on fb i’m sending t&p your way. you’ve had to deal with some much with this and it sucks. a lot.

but it sounds like you have a great support team around you. and you’ve been super strong and wicked smart so i know you’ll make the right decision for you. keep asking questions and staying informed! you can totally pull through this!

]]> By: Tanya L. http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/comment-page-1/#comment-712 Tanya L. Sat, 26 Sep 2009 11:52:40 +0000 http://runroamrecycle.wordpress.com/?p=694#comment-712 Hey, Erica! I was so glad to see your blog up and running again (and you too!). I am so sorry this FD mess has acted up again, but as I'm sure you know by now, fractures are common in the diseased bone. Please consider putting your doctor in contact with Dr. Stanton, as he is one of the best doctors in the world for FD. Have you considered intramedullary rodding? That's what Lauren will have to have when she fractures, and rods are very successful in many. I hope you'll discuss this with your doc as a possibility. Our thoughts and prayers are with you for great care and a speedy recovery. My heart breaks for you, as I know how hard you have trained. Please keep us updated along the way... Hugs to you and your mom! God Bless- Tanya and Lauren L.(MAS/FD) Hey, Erica!

I was so glad to see your blog up and running again (and you too!). I am so sorry this FD mess has acted up again, but as I’m sure you know by now, fractures are common in the diseased bone.

Please consider putting your doctor in contact with Dr. Stanton, as he is one of the best doctors in the world for FD. Have you considered intramedullary rodding? That’s what Lauren will have to have when she fractures, and rods are very successful in many. I hope you’ll discuss this with your doc as a possibility.

Our thoughts and prayers are with you for great care and a speedy recovery. My heart breaks for you, as I know how hard you have trained. Please keep us updated along the way… Hugs to you and your mom! God Bless-

Tanya and Lauren L.(MAS/FD)

]]> By: star http://www.thetriathlonrx.com/2009/09/fibrous-dysplasia-the-sperly-hip-a-history-in-the-making/comment-page-1/#comment-711 star Sat, 26 Sep 2009 10:51:00 +0000 http://runroamrecycle.wordpress.com/?p=694#comment-711 I want to give you a hug :( Agh Sperly, im truly gutted for you. You are seriously one hard chick though and I love your fighting spirit. Nothing ever stops you from just rying to be thankful for what you have. We all know how easy it would be to just say FML. Dont worry about what anyone else thinks about your decision to run/not run this marathon. It is your decision. Listen to your medical team's advice, listen to your family, listen to your body, your head, your heart... Im glad you have such a good dr who is there to answer your qstns...keep firing them girl! The more info you have the better. I know you have been running your whole life and that its not just a wee 'hobby on the side' for you. I also know that you are always sensible when it comes to following medical advice. So dont feel as though you have to explain yourself to anyone. We love you for who you are <3 Take Care and do try and get that, ever so important, recovery time under the duvet ;) x I want to give you a hug :( Agh Sperly, im truly gutted for you. You are seriously one hard chick though and I love your fighting spirit. Nothing ever stops you from just rying to be thankful for what you have. We all know how easy it would be to just say FML. Dont worry about what anyone else thinks about your decision to run/not run this marathon. It is your decision. Listen to your medical team’s advice, listen to your family, listen to your body, your head, your heart…
Im glad you have such a good dr who is there to answer your qstns…keep firing them girl! The more info you have the better.
I know you have been running your whole life and that its not just a wee ‘hobby on the side’ for you. I also know that you are always sensible when it comes to following medical advice. So dont feel as though you have to explain yourself to anyone. We love you for who you are <3 Take Care and do try and get that, ever so important, recovery time under the duvet ;) x

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